FOP affects One in 2 million...meet one...

Ali's Army against Fibrodysplasia Ossificans Progressiva. Ali McKean suffers from FOP,  one of the rarest &
 most disabling conditions in the world. Read on throughout the site to learn more about Ali and FOP.

Alexandria McKean


Site Owner
Joined Apr 23 2012
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McKean Studios
McKean Construction Weatherization & Inspection Services
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10 Comments

Reply cc :)
7:54 PM on July 20, 2012 
It's my pleasure to help you guys :) honestly, doing things like this make me feel better about myself. Haha.
Reply Lauren Adele
2:20 PM on June 9, 2012 
Just wanted to say Keep up the faith!!! I just had a woman to come in the store and ask about the cards I had and cried and said she was going home to join and donate!!!
Reply Mariah Ayers
10:21 PM on June 5, 2012 
Hi! I know Lisa and Jade! I saw Lisa post this link and I lclicked it and read her story! She is beautiful! I hope all is well! Prayers for Ali!
Reply Sassy
6:37 PM on June 5, 2012 
Your So Welcome Prayers Out to You And Your Family :)
Reply Dala
4:01 PM on June 5, 2012 
You are so very welcome. My prayers are with you , Ali and all of your family! Hang in there Ali's mommy, I know it must be so hard, but your love for Ali and all your family is so very special. Lots of prayers coming your way!
Reply Karen Munro
12:07 AM on May 31, 2012 
Awesome, Ali's mommy! I sent you a Facebook message too. If there's anything I can do to help you in these very difficult early days of your daughter's diagnosis, please let me know.
Reply Angel Johnson
11:06 AM on May 10, 2012 
I just wanted to let you know what an Awesome website this is. Not only is it tough as a mother watching your child helplessly as she goes through so much as a small child and not being able to take it away but to be as strong as you are to step up and speak out about FOP to others! I applaud you! prayers to your family and little Ali
Reply Larkin
9:46 AM on May 10, 2012 
Ali is a blessing and a gift. No child should have a blind eye turned towards them. I pray and and know that God DOES hear our prayers for Ali! He is an AWESOME God!!
Reply Nicole
11:01 AM on May 9, 2012 
I am sending some long distance, pressure free hugs! Always praying for strength and comfort for all of you!
Reply Ali's Daddy
6:46 PM on May 7, 2012 
I love you so much, there is no other person in the world that I would rather have at my side for the upcoming battle than you. You are my rock, and I thank you so much for keeping me grounded in these tough times.