FOP affects One in 2 million...meet one...

Ali's Army against Fibrodysplasia Ossificans Progressiva. Ali McKean suffers from FOP,  one of the rarest &
 most disabling conditions in the world. Read on throughout the site to learn more about Ali and FOP.

The reason we fight!

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so she can be silly
Posted by Alexandria McKean on May 5, 2012 Full Size| Slideshow

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5 Comments

Reply annie
12:59 AM on June 19, 2012 
Cindy says...
Thank you for sharing Ali's story. You have a sweet, beautiful little girl who indeed does deserve to live a full and active life. I am a mom myself and am a "kid person", too, so Ali's illness touches me deeply. Never do we want to see our children or any child go through something so serious. I am keeping Ali and your family in prayer. Your family's love is the best thing she can have. Please give her a hug from me. May the Lord bless you all.
Reply annie
12:58 AM on June 19, 2012 
Erica says...
what a brave little girl. this is heartbreaking. i am so sorry for all your horrible troubles. you are in my thoughts.
Reply Annie
10:54 AM on June 15, 2012 
You are an amazing person! I saw your interview. Ali is a sweet little girl. She deserves to have caring parents.
Reply Cindy
11:06 PM on June 4, 2012 
Thank you for sharing Ali's story. You have a sweet, beautiful little girl who indeed does deserve to live a full and active life. I am a mom myself and am a "kid person", too, so Ali's illness touches me deeply. Never do we want to see our children or any child go through something so serious. I am keeping Ali and your family in prayer. Your family's love is the best thing she can have. Please give her a hug from me. May the Lord bless you all.
Reply Erica
9:16 AM on June 3, 2012 
what a brave little girl. this is heartbreaking. i am so sorry for all your horrible troubles. you are in my thoughts.