Ali's Army against Fibrodysplasia Ossificans Progressiva


Ali McKean suffers from FOP, one of the rarest & most disabling conditions
in the world. Please continue through the site to learn more about FOP, it's
signs, and Ali's story.

The Army :) Join Site

CONGRATULATIONS  to Angel Johnson, the winner of the tshirt for the 200 member drawing! Make sure your profile is complete to be eligible for future drawings & giveaways!! As always thank you all for being part of Ali's Army!

CONGRATULATIONS to Kim Harden, who was the winner of the tshirt for the 100  member drawing! Once we hit 200 members we will giveaway another item! We are only a few away!!

Please join the army here, membership is free! We plan on many exciting things in the future for members only! So sign up today! Thank you for visiting Ali's Army and don't forget to spread the word and help us raise awareness!

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A. Bennett
Member
Male
39 years old

AJ&Chris
Member
Female
About Me
I am a friend of a family member. I am also a parent. As an Aunt if a Niece with Autism, I can only imagine the pain. I will gladly help raise awareness!

ANGIE WILLIAMS
Member
Female
45 years old
About Me


Ali's Daddy
Administrator
Male
34 years old
About Me
Being a daddy to 4 amazing kids is one of the greatest things that I have ever done. My family is my life and I would do anything to protect them all. This disorder however has shown me that there are somethings that even a daddy can't fix, but I can and will fight in the hopes that a cure or treatment can be found, so that no other parent has to watch their child slowly "freeze". I AM ALI'S ARMY!

Angelina
Member
Female
24 years old
About Me

I am happy to help raise awareness for Ali in any way that I possibly can. I have what is commonly refered to as rubber-band man syndrome, or ehlers-danlos syndrome, and I can no longer walk or even push my wheelchair much becuase my joints and soft tissue will not stay together. So as a person with another rare gentic condition I will gladly do all I can to help Ali!



Jenny
Member
Female
37 years old
About Me

 



Joey
Member
Male
About Me




K.J.
Member
Female
20 years old

Keirsten Gildehaus
Member
Female
16 years old

Kenneth & Theresa Mazur
Member
Female
42 years old
About Me

:)Hello, we are Ken and Theresa Mazur, and we hail from Marblehead, Ohio. It is on the shores of Lake Erie, about 20 minutes from America's Rockin Rollercoast, Cedar Point. We have three beautiful daughter's Kelsey-18, who is expecting our first grand daughter in August, Lauren-13, and Keilynn-7. We support Ali's army because we know what its like to struggle and go through rough times. My oldest daughter has been through ten surgeries since the age of 5, and continues to have odd health issues. I hated seeing her go through that, so I stand by you and your family as they face the unknown. As my daughter graduates in less than a month, and has her baby in August, she will be out on her own and she will know first hand what its like to worry so much. Our wish for you is that you will always know who to turn to in everything. God is a God of wonders. Through him, we can move mountains. Never give up the hope or faith. God Bless you all.




Leah
Member
Female

Ali's Big Brother
Member
Male
About Me

I am proud to be Ali's big brother I try not to bump her but i do it on accident.

I AM ALI'S ARMY!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!



Ali's Bigger Brother
Member
Male
16 years old
About Me

Ali is my little sister who I love very much. Seeing my sister going through this situation is unbearable at times. We really appreciate all the support everyone is giving us. No matter what happens she will always be in my heart. I AM ALI'S ARMY!!!!! <3:)



Ali's Mommy <3
Site Owner
About Me

I am a very proud mommy of 4 great kids. For many years as a mommy I was able to kiss away all of the kids' scrapes, bumps and boo boo's. Cute bandaids seem to fix anything. Even though I am able to make Ali feel better at times with kisses and soft hugs, I can't fix HER boo boo's. FOP has taken that from me. I live every parents nightmare...every day. I watch my baby suffer daily...helplessly. I watch my older 3 children struggle to grasp the fate that envelopes their baby sister. Helpless & scared. The only thing that is in my control is the love I have for my kids, and the little comfort I can give them, and my fight. I AM ALI'S ARMY!




Amanda
Member
Female
38 years old

Amanda
Member
Female
23 years old
About Me




Amber
Member
Female
35 years old
About Me
33 yr old mommy to 3 kids and a FT RN

Amber and Nate
Member
Female
29 years old
About Me
Nate and I are good friends of Angi and Gabe. We are very glad they are a part of our lives. My son just loves to play with Ali. We are very happy to be members of this army

Ananya Garg
Member
Female
About Me

I am in love with ALI :)



Angela
Member
Female
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