Ali's Army against Fibrodysplasia Ossificans Progressiva


Ali McKean suffers from FOP, one of the rarest & most disabling conditions
in the world. Please continue through the site to learn more about FOP, it's
signs, and Ali's story.

The Army :) Join Site

CONGRATULATIONS  to Angel Johnson, the winner of the tshirt for the 200 member drawing! Make sure your profile is complete to be eligible for future drawings & giveaways!! As always thank you all for being part of Ali's Army!

CONGRATULATIONS to Kim Harden, who was the winner of the tshirt for the 100  member drawing! Once we hit 200 members we will giveaway another item! We are only a few away!!

Please join the army here, membership is free! We plan on many exciting things in the future for members only! So sign up today! Thank you for visiting Ali's Army and don't forget to spread the word and help us raise awareness!

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A. Bennett
Member
Male
38 years old

AJ&Chris
Member
Female
About Me
I am a friend of a family member. I am also a parent. As an Aunt if a Niece with Autism, I can only imagine the pain. I will gladly help raise awareness!

ANGIE WILLIAMS
Member
Female
44 years old
About Me


Adrian
Member
Female
33 years old

AjaSchadwil
Member
Female
31 years old

Ali's Bigger Brother
Member
Male
16 years old
About Me

Ali is my little sister who I love very much. Seeing my sister going through this situation is unbearable at times. We really appreciate all the support everyone is giving us. No matter what happens she will always be in my heart. I AM ALI'S ARMY!!!!! <3:)



Ali's Mommy <3
Site Owner
About Me

I am a very proud mommy of 4 great kids. For many years as a mommy I was able to kiss away all of the kids' scrapes, bumps and boo boo's. Cute bandaids seem to fix anything. Even though I am able to make Ali feel better at times with kisses and soft hugs, I can't fix HER boo boo's. FOP has taken that from me. I live every parents nightmare...every day. I watch my baby suffer daily...helplessly. I watch my older 3 children struggle to grasp the fate that envelopes their baby sister. Helpless & scared. The only thing that is in my control is the love I have for my kids, and the little comfort I can give them, and my fight. I AM ALI'S ARMY!




Amber
Member
Female
35 years old
About Me
33 yr old mommy to 3 kids and a FT RN

Ali's Daddy
Administrator
Male
33 years old
About Me
Being a daddy to 4 amazing kids is one of the greatest things that I have ever done. My family is my life and I would do anything to protect them all. This disorder however has shown me that there are somethings that even a daddy can't fix, but I can and will fight in the hopes that a cure or treatment can be found, so that no other parent has to watch their child slowly "freeze". I AM ALI'S ARMY!

Ali's Big Brother
Member
Male
About Me

I am proud to be Ali's big brother I try not to bump her but i do it on accident.

I AM ALI'S ARMY!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!



Ali's Big Sissy <3
Member
Female
17 years old
About Me

Being Ali's big sister, I have gotten to watch her grow and play for the last 5 years. Seeing her learn new things and helping to teach her new things, it makes it very hard to know what she is going through now and what the future holds for her. I can't imagine her ever being anything other than what she is. I wish I could fix it, I wish I could make her better. As her big sister I just want to help her, but I can't fix this. Mom and Dad can't fix this. I love Ali with my whole heart and love having her as my baby sister, I wouldn't trade her for anything in the world. I just wish there was something I could do...I will pray with my family and I will fight with Ali...I AM ALI'S ARMY!! <3



Alicia
Member
Female
19 years old
About Me

I'll be praying for little Ali <3



Amanda
Member
Female
38 years old

Amanda
Member
Female
22 years old
About Me




Angel Johnson
Member
Female
37 years old

Angelina
Member
Female
24 years old
About Me

I am happy to help raise awareness for Ali in any way that I possibly can. I have what is commonly refered to as rubber-band man syndrome, or ehlers-danlos syndrome, and I can no longer walk or even push my wheelchair much becuase my joints and soft tissue will not stay together. So as a person with another rare gentic condition I will gladly do all I can to help Ali!



Amber and Nate
Member
Female
28 years old
About Me
Nate and I are good friends of Angi and Gabe. We are very glad they are a part of our lives. My son just loves to play with Ali. We are very happy to be members of this army

Ananya Garg
Member
Female
About Me

I am in love with ALI :)



Angela
Member
Female

Ashley
Member
Female
29 years old
About Me

I am proud to be apart of Ali's Army!


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