FOP affects One in 2 one...

Ali's Army against Fibrodysplasia Ossificans Progressiva. Ali McKean suffers from FOP,  one of the rarest &
 most disabling conditions in the world. Read on throughout the site to learn more about Ali and FOP.


Welcome to Ali's Army. Thank you so much for stopping by and for supporting our baby girl. Please take a minute and sign our guestbook. We (Ali's parents) read each and every comment we receive personally, and they mean so very much to us.

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Reply Devakamali
2:01 AM on February 4, 2017 
А, что очень даже интересно,спасибо за информацию.
Reply Smithg509
1:11 PM on December 4, 2016 

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Reply ryan
7:11 PM on April 16, 2013 

i will try to do what i can


Reply Toni Tackett
8:25 PM on January 8, 2013 

I just happened by your website after seeing something on Facebook.  We'll keep Ali and your family in our prayers.  God bless you!  Keep your spirits up and a smile on your face.

Reply Katie Smith
3:24 PM on November 30, 2012 

Hi there guys! I love the work you are doing and how positive you are about life. Ali is such a beautiful little girl with obviously great charisma for coping so well with her condition. Ali is a great credit to you! Thank you for inspiring me to keep going- I will pray for a cure. 

Loads of love and wishes for the future from Hampshire, UK :D xxxx

Reply Melissa
8:38 PM on October 7, 2012 

Hi, I'm from across the pond in the UK. I'm a prospective medical student who has been reading about FOP as it's particularly interested me. I think that people need to be more aware of it so that it can be diagnosed straight away. My thoughts are with Ali, so brave. Good luck with your journey, I'm thinking of organising some fundraisers over here! x

Reply Jenna Mayse
7:36 PM on August 17, 2012 

I've never met Ali or her family, but I know them through my grandma, Cheryl Lee, who's Ali's great aunt. Even though I havn't met them I still love them VERY MUCH!!! <3 Best wishes to all of you!:D

Reply Kerry Zenich
2:19 PM on June 18, 2012 

We are friends with the Snow family of Santa Maria Ca and have been active in the FOP community since Stephanie was diagnosed. We just recently learned of Ali's diagnosis and of Zip Gordon, a little boy in Oklahoma! Dr. Kaplan and his team are so close...we will continue to support FOP and pray for a cure for all! Much love to your family!!

Reply Alexandria McKean
12:31 PM on June 14, 2012 

Jen Dennings says...

I saw your segment on youtube. I wish little Ali all the best. My son is Cody, he is 16 and has FOP. We went through the same thing here in Texas 8 yrs ago trying to figure out what was wrong. Glad to see you are helping spread awareness. And I love your website!





Hi! Thank you for stopping by! We will be sending some prayers up for your family as well. Are you part of ifopa? Would love to connect with you!

Reply Alexandria McKean
12:30 PM on June 14, 2012 

Elyssa says...

Hi, my name is Elyssa and I'm a seventh grader living in New York. I was reading some article online when I came across this website...I couldn't stop thinking about Ali all day. I hope she is doing well! Your entire family is in my prayers daily!

Thank you so much for taking the time to read her story and for posting here in our quest book! We really appreciate the prayers!