FOP affects One in 2 one...

Ali's Army against Fibrodysplasia Ossificans Progressiva. Ali McKean suffers from FOP,  one of the rarest &
 most disabling conditions in the world. Read on throughout the site to learn more about Ali and FOP.

 Meet our Ali...

"Motherhood is about raising and celebrating the child you have, not the child you thought you would have. It's about understanding that she is exactly the person she is supposed to be. And that, if you're lucky, she just might be the teacher that turns you into the person you are supposed to be." - Joan Ryan


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Ali's Army around the globe! Pin your location HERE !

Reporter's Notebook 12-09-13

Sandusky Register 12-02-13

13ABC Ali & Her School Robot 10-03-13

The Jeff Probst Show 11-13-2012

WNWO 11-13-2012

WNWO May 30,2012

Daily Mail June 1, 2012

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Join the Army here on the website by clicking here

View photos of Ali & her army here

Do you or someone you know suffer from osteoarthritis, osteoporosis, heart disease or even bone cancer? Do you know an amputee, someone who has needed a hip or knee replacement? Or even someone who was born missing some bones or has needed a spinal fusion? Did you know that curing our daughter Ali's disease could mean more advancements in helping those who suffer from those conditions? Please watch this video, (I promise it isn't a bad link) this is an interview with the mum of a little boy with FOP (Ali's condition) in Australia, and also includes Louise from Scotland, this is the single best report we have ever watched on FOP. Everything these mums say, its like its coming from my own heart. I promise you won't regret watching it. It also features Dr Kaplan (our hero Dr in Philly) please spread this video around, we need everyone to know that by curing the very few affected by FOP we could be making a huge turn medically to helping so many others! Please feel free to ask questions you may have after watching it, we will be happy to answer any questions to the best of our ability.